Working with Mattie Miracle Cancer Foundation to Create Better Outcomes for Kids
On January 24, the Mattie Miracle Cancer Foundation held a Psychosocial Implementation Policy Roundtable on Capitol Hill. This event focused on identifying the strategies and challenges for implementing psychosocial standards of care. The roundtable brought together a wide range of stakeholders including researchers, clinicians, psycho-oncologists, psychologists and accreditation experts. My colleague, Todd Schuerhoff and I had the privilege of helping to moderate the day’s events. We were honored to play even a small role in such an important occasion.
The event focused on the need for implementing standards of care to ensure that access to quality psychosocial care from diagnosis, through treatment, into survivorship or end of life and bereavement care is provided to children with cancer and their families. The day was broken into six major topic areas including Outcomes, Legislative/Policy, Resourcing, Reimbursement, Accreditation, and Delivery Models. For each topic, an expert in that particular area introduced the topic and described the current landscape. Following that presentation, we facilitated a group discussion in an effort to discuss and develop strategies. We had the enormous benefit of a fully engaged, informed, and vocal group that really made the sessions meaningful and productive.
Applying Client Strategies to Make a Difference
In facilitating these sessions, we borrowed a play from our client playbooks and structured the discussion in a way that both effectively summarized the key points and packaged the results in an actionable format. Specifically, we used a “SWOC” analysis that identified the following in each area:
- What is being done well today (strengths)
- What is not being done well enough today (weaknesses)
- Areas for improvement (opportunities)
- Potential limits to our ability to make progress (constraints)
With this construct, we guided the discussions to ensure that the roundtable produced tangible next steps. The necessary groups can pursue these actions to make collective progress on the implementation of psychosocial standards.
As an example, one of the discussions focused on the findings of a research effort. The researchers surveyed 144 pediatric oncology medical programs to assess their readiness to implement standards-based psychosocial care. A key opportunity that emerged from that discussion was the development of a maturity model/framework. This model helps describe and categorize the state of the various capabilities these medical programs provide. This resource has the potential to help propel the industry forward, providing a tool that can help guide these programs further down the maturity curve while also helping to inform and assist both patients and medical professionals.
In addition to the discussion sessions, Mattie Miracle honored several members of Congress as Mattie Miracle Childhood Cancer Psychosocial Champions. Mattie Miracle recognized them for the extremely important work they have done and for understanding that childhood cancer is not just about the medicine. Honorees included Congressman Michael McCaul (TX), Congresswoman Jackie Speier (CA), and Senator Chris Van Hollen. Each of the honorees have played critical roles in advancing and spearheading legislation and continue to be true champions in the fight against cancer.
Making a Better Future for Those Fighting Cancer
The continued support and commitment that Dominion has provided the Mattie Miracle Foundation throughout the years makes me proud. Likewise, I am glad that I can be a part of it. I cannot express how proud we are of the tremendous work that the Mattie Miracle Foundation has done to enrich the lives of so many families who are fighting pediatric cancer today.
I want to send a special thank you to Vicki and Peter Brown, co-founders of the Mattie Miracle Foundation and Mattie’s wonderful parents. They have been tireless in all that they do in advancing the state of psychosocial care to those in need. You are a true inspiration for all of us at Dominion Consulting!
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